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Autism: Drained of Energy

19 Apr

My head is pounding today, and once more I have no energy. I should have expected it, I guess – but as is usual for me, when I do have good days, I expect them to last. After 40 years, I probably should have learned this isn’t the case for me. Still, it is good to have hope.

For months my energy has been low, even for me. I hardly have the ability to do routine things, like cook and clean, let alone find motivation to add anything to my schedule.

In the last 6 days, I had decent energy for 4 of them. Sunday I was really tired, but I have come to the conclusion (after months of Sundays ending the same way) that church – even when I enjoy it, and feel good there – exhausts me. Every Sunday I am overwhelmed, and exhausted, and prone to meltdowns. I guess that is the cost of being around people.

For four days, though, I had energy. That might not seem like such a big deal for most people, but I keep a ‘mood chart’ which I send to my therapist once a month. This keeps track of how depressed, anxious, and irritated I am each day, along with how much sleep I got, which medications I took, and how much energy I had that day.

The energy section is on a scale of 1-4, with 4 being high. Some days I have taken to putting in 0, as I haven’t the energy to stand, let alone get anything done. Most months I will have several squares marked ‘1’, with more around ‘2’, and the occasional 3. I hardly ever reach 4 for energy; that might come if something exciting was planned, but isn’t even guaranteed for that. I am not a high energy person. Maybe one or two days a month would be marked ‘0’. I just couldn’t.

For the last three or four months however, the pattern looked more like a computer code or something (I don’t know that much about computers, but…) 1-0-0-1-0-1-0-0-0-1-0-1… for months. I was sick twice during that time. Really sick. Well… not hospital sick, but sick enough to think it could kill me. Both times the illness held bad for a couple of weeks, and left me drained after.

It is not unusual for me to have low energy, but this is ridiculous even for me.

And then in the last week, I have had 4 days where I marked ‘3’ on my chart. Four! And I can’t express how good those days felt. I cooked. I cleaned. I exercised. I practised my keyboard. I made a gardening scrapbook. I planted seeds in starter pots. I dreamed.

DSC02324

How wonderful!

I wonder what it would be like to have energy like that most of the time. Some people do. I know some people do. But I never have. Perhaps if I had energy, I wouldn’t be so depressed all the time… I wonder: Am I depressed because I rarely have energy, or do I rarely have energy because I am depressed?

Even as a child, though, my energy was very low… but then I remember crying myself to sleep every night, too, from the age of about 7 or 8 – so it is possible I was depressed even then.

I don’t know. What I do know is that I had energy this week. I had it, and it felt so good, and I thought that this time I would be able to hold onto it.

Today, however, my head is pounding, and it took me most of the day just to gather the energy to pick up the keyboard sitting on the table right beside me to type this blog. That was all the effort I could manage for today. I wish… I wish I had energy.

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2 responses to “Autism: Drained of Energy

  1. grace to survive

    April 20, 2017 at 3:37 am

    Have you had blood levels checked, specifically CBC to check for anemia?

    Liked by 1 person

     
    • Walkinfaith925

      April 20, 2017 at 8:38 am

      Frequently. Whenever my doctor goes over the results with me, he tells me my blood work shows I am REALLY healthy. Meanwhile I am sitting in his office thinking, “then why do I feel so sick.” I was anemic around the time I was pregnant with my son – 21 years ago – but haven’t been since.

      Liked by 1 person

       

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