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Now!

Reflections of time shining on the surface

A glow of fear and pain

Wishing it would never be shown

Wishing they didn’t need to know

But here I am again.

Words echoing in my mind

So much that I need to say

Rattling my brain, turning away

Why do I have to go back to that day?

Trying to find where to begin.

A great escape behind the wall

A place to hide, to shine, to cry

Trapped inside, searching for a key

To unlock the chains and set me free

But where do I go from there?

Afraid of the world flowing past outside

People who don’t understand

So much power over me

Deciding what’s right – but can’t they see

All I need is some help from a friend.

How to express what they’ve never known

Living a life where one doesn’t belong

Trying to fit in a world that rejects

Anyone different from them and expects

Us all to be the same.

Shaking and dizzy I walk in the room

Working to gain the strength

To say what I must, though the words won’t come

How do I tell them how I’ve overcome

When I know that I haven’t – yet.

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Autism: Dead or Alive

I woke up coughing at 5:30am. This was not related to the smoke in the house that I mentioned on my last post – though it probably had something to do with it, my house was not smoky on this particular night.

I felt like I was choking, and my first thought (which lasted for several minutes) was that there had been a fire and I died of smoke inhalation. For about 5 minutes, even though I could dimly see my room around me, felt and heard ‘my girls’ beside me, and was aware of one of my cats on the bed as well (I have a very full bed these days!) I completely believed this to be true.

When I told people at my Life Group (Bible Study) about this, one of them asked if I was in Heaven. When I said, “No, I was looking at my clock, and into the faces of my dogs,” she mentioned something about the possibility that I wouldn’t make it there; to heaven, that is…

Panic!

If I dream I have died (though this wasn’t a dream) and don’t find myself in heaven – does that mean I am not saved?

Thankfully my husband responded that he believes there will be animals in heaven, and gave his reasons – so in a few seconds I was calmed by his words (thank you, dear husband!) I need my dogs. I don’t think that will change when I am dead.

So there I was, lying awake in bed, fully convinced that this was the beginning of the afterlife and I would be trapped in this place (at least I had my babies with me!) when I realized I must be alive.

How disorienting that was!

It was then that I felt a deep longing for my youngest (foster) daughter who was taken from me 8 years ago, and remembered that I had been dreaming of her – though the dream escapes me now – when I was awakened by the choking.

Perhaps in those last moments of my dream there was a fire, and I was dying in it.

What a strange experience that was, and I wonder if there are other people in the world who are fully alive, and believe they are dead. So weird.

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Autism: Smoke and Panic

The last couple of logs that I put into the fire in the morning didn’t burn well. While I was making supper, I kept smelling smoke. Finally I figured out that it was from the logs (our fireplace doesn’t tend to smoke, so this was highly unusual.) So I moved the logs around, but the upstairs was still all smoky.

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My husband looked into the fireplace when he got home, but didn’t see anything wrong.

I guess the bigger challenge was that I had only just realized that our wired in smoke alarms weren’t working (I wonder how long ago that started!) We didn’t even have backup battery operated ones that worked, so my anxiety was very high.

After all, I have known a few people whose houses have burnt down. My grandmother was one of them, and though the people were all out of the house at the time, she lost all 5 of her cats in the fire, and burned her hand when she tried to open the door to get them out (she was just arriving home when she saw the fire.)

If my animals died in a fire, it would be a trauma I would not overcome. It would hurt me for the rest of my life. This I know.

Well, the smoke filled the upstairs enough that it aggravated my throat through the night. That, mixed with my panic about the smoke alarms, set me into a panic that made it very difficult to get to sleep.

It was about 1am before I slept, and has been happening for about 2 months now, I woke up at 3:45 am unable to get back to sleep.

Though I am sleeping little, doing little, and functioning very slow, the days are flying by.

I feel detached from the world, and disoriented from the speed – like the roundabouts they used to have in the playgrounds when I was a kid (before they regulated the speed they were able to spin.) I feel like I am watching the world spin and waiting for my opportunity to jump on – but it is too fast, and I get dizzy just watching it.

 

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Autism: Created to Be

When I left, I felt really good. I was decently calm (I never am fully calm when I have anything to do) and even wanted to be out visiting; which is very unusual for me. I talked to people, and smiled, and then…

It wasn’t part of what he had planned to say, but he made a comment about ‘human people,’ which lead him to start talking about ‘dog people.’ You know, like “human people… I don’t know why I said that. What other kind of people are there… unless they are dog people…”

So then he went to mention that they were not people – dogs that is – or your babies, or…

He made it sound like a joke, and lots of people were laughing. Some were even clapping, which doesn’t happen frequently.

Then he said he thought it was a gospel problem, and he could write a whole sermon about it. Then he went back to what he had been talking about before he got distracted.

The whole thing maybe lasted 2-3 minutes – but it caused me struggle for the entire day. Not even a little bit, I was fully triggered into severe anxiety and depression, which were very difficult to overcome.

My babies are my source of joy. A level of joy I have rarely experienced in my life. They are… if not healing my loss (which isn’t likely to happen this side of heaven – the pain and trauma and triggers are all to much) they are at least helping me to go forward.

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They are an answer to my ache for children, for family, even for friends – which people took from me over and over again.

They are my tie to sanity, though I have to let go of some to keep the rest.

They are not people – and I am so thankful for that! But their place in my life as my ‘babies’ is essential for so much of my life it would take all day, and maybe even more, to explain it (and even then most people wouldn’t understand it.)

It was a joke, but still I worry that people are coming to take even this away from me. And why not? They’ve taken pretty much everything else. And it makes me want to hide again, and not go to church, or write, or go out, or be seen, or share myself with anyone ever again – much as I felt when my children were taken.

And it was only my dog, who was given to me for that very reason, who could pull me through that. Then he died, and I was back there again. So I was given Clara, and a few months later Molly, and several months later Misty-Grace. They are my babies…

I went in happy, and left in pain. I am pretty sure he didn’t mean for that to happen – and while it may sound like I am venting about ‘those’ people who don’t understand, this is a man I both like and respect. Perhaps if it weren’t so, it wouldn’t hurt so much.

It is just another thing wrong with me.

I was upset for a long time after until… the sermon series we have been on is titled ‘God Still Speaks.’ And this I believe. I was upset until God reminded me through thoughts that He gave me my dogs, and He gave them to me for this very purpose. He gave me this heart for animals, and it is a gift – not a gospel issue.

This love I have for my babies is a strength, not a weakness, and this is an essential part of who I was created to be.

 

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Autism: Tapestries

When I was a child my Aunt had a wall mural along one wall in her basement. It was framed like a window, and even had a curtain. Since her couch was against this wall, I didn’t spend as much time, maybe, as I would have liked looking at that mural.

I am not sure if she still has that mural on her wall as I moved across the country 17 years ago, and haven’t been in her house since.

When I was a teenager, there was one day when several of us were visiting at a friend’s house. For whatever reason, which I cannot now remember, we were visiting in her sister’s room (her sister wasn’t there, but in my memory I don’t have the impression that we shouldn’t have been in there.)

On one wall of her sister’s room, there was also a mural. Two of my friends were on the bed, which was along the wall with the mural. They were doing a hypnosis game, which we did a lot in those days. Another friend and I were sitting on the couch facing the mural.

As I was sitting there, I suddenly felt myself transported into that picture, which was of a forest, and for many minutes I was imagining that I was walking along one of the trails into the woods. As I was ‘walking along’ I felt a presence to my right, with an awareness that someone was walking along another trail to that side of me.

A few minutes later, the friend on the couch beside me (as I was sharing what I had been imagining) told us that she had, at the same time, been imagining that she was walking along that other trail to my right.

Pictures.

I can get lost in pictures, and in fact frequently do. Perhaps that is why I like Pinterest so much, and spend so much of my time perseverating on that site.

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A few days ago, as I was looking through my… I don’t know what it is called… feed??? Anyway, as I was looking through Pinterest, I came to a picture of Christmas tapestries. Immediately my interest was piqued, and I followed through to the site where they sold these tapestries.

They did have a lot of Christmas ones, and I really liked them – but they also had forests, and beaches, waterfalls, the night sky, cities… so many beautiful pictures. I spent hours looking through them, for even in these tiny representations of the much larger tapestries, I could see that they were realistic enough that in looking at them I could be transported in my mind to other places and experiences.

I think that if I were going to get a tapestry (and I can see what huge benefit this would bring to my life) I wouldn’t just want one. I would get several, and change them depending on my mood or what season it was.

And I would spend hours staring at my wall and imagining I was somewhere else.

How magnificent would that be?

 

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Autism: Hot Water

What was it I was trying to say?

An entire blog post to share that my husband had our hot water tank replaced, and I didn’t talk about that at all. So like me, I have to share all the small details to ensure that my story is 100% accurate with no room for misunderstanding (of course, it seems even with all that – or maybe because of all of that – I am frequently misunderstood anyway.)

So a post about my new hot water tank instead became a post about going swimming, and why (though I love it) I don’t do it very often.

We have lived in this house for 14 years (and nearly a month.) My husband bought it for us, with my input, when we were getting married. When we were looking for a house, houses were selling fast! This was the fall of 2003 just before prices jumped so much that we couldn’t have afforded to buy a house at all. We put our offer in for three other homes before we bought this one.

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One of the issues in choosing a house was that I was running a daycare at the time. There were many regulations to running a licensed in home daycare, and most of the houses we looked at might not have met the rules. I suppose it didn’t help that I knew that if I had to worry about everything my husband was doing in the daycare/house we wouldn’t have had a good marriage, so I was insisting we have separate space for living and childcare – and I never even considered that we could use the main floor for my business, and the lower level for our home… and the daycare had to have two exits, so… it took a lot of houses to find one that suited.

Okay, so this blog isn’t about my daycare either…

When we bought the house, it had a really nice, all one piece, bathtub. It looked very inviting, but I quickly found out our hot water tank wasn’t large enough or strong enough to get enough hot water for a bath (for adults anyway.) It was fine for little children, even when we had three having baths one after the other and another having a shower after that.

For myself, though, I could only get a couple of inches of water warm enough in the bottom of the tub before it was cold coming out of the tap. So for fourteen years I stuck to showers in this house. Great for getting clean and conserving water, but not great for soaking – and I have had a lot of issues with back pain, foot pain, and general aches… I could have used a bath.

But the tank had been replaced only a few years before we bought the house, and it seemed selfish to me to ask for a new hot water tank just so I could have a bath. No one else cared, and we thought we had enough hot water for everything else.

Turns out we didn’t have enough for our dishwasher either. We always got our dishwashers from the thrift store, so when the dishes weren’t getting clean enough, I just thought it was because they were second hand. Then another of a long line of machines we tried broke. There was no way I was going to pay hundreds of dollars for a new one that might only last a few years, so I started washing by hand. That is when I realized we didn’t have enough hot water for that, either.

Plus, the tank we had was nearly 20 years old, and we found out we would have to replace it anyway due to insurance reasons. So my husband agreed.

Now I am able to have a very hot bath – so hot I have to turn on the cold water about halfway through just so I don’t burn myself getting in.

And it is so nice.

I might not get the exercise that I would get from swimming, but it provides for all other benefits without all of the effort.

  • No leaving home.
  • No crowds.
  • No wet clothes to deal with after.
  • No chlorine (well not nearly so much anyway.)
  • No extra shower after.
  • No pre-booking transportation
  • Very little pre-planning.
  • Lots of calm!

Besides, I can get my exercise in other ways without having to go so far from home.

 

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Autism: Too Much Effort

I meant to go swimming almost weekly this year. I wanted to do the same last year. My therapist (who is no longer working with me – something about being short term only…) said she could get a free weekly pass to the community centre both last year (but I had no transportation) and this year (but she hasn’t talked to me since she offered.)

I wanted the free pass, but I didn’t get it. I could go for the Toonie swim, and did for three weeks straight in September/October, but I would be more likely to go with the pass.

Swimming is a good activity for me.

Though I am allergic to the chlorine and get rashes, and though I prefer to swim alone (I wouldn’t say the pool was crowded when I went, but there were people I had to swim around, and children who jumped in and splashed into my ears causing earaches) being in the water is calming enough that I am able to get through those things.

When I go swimming I:

  • get out of the house
  • do exercise
  • quickly become calm
  • feel good after
  • am happy
  • often sleep well after

All things my therapist told me I should be doing when she was talking with me.

But there are a lot of barriers to this activity for me.

First of all, I have to contact the Handy Dart bus service three days in advance to book my ride. I don’t know three days in advance if I am going to be functioning well enough to leave the home, so that makes this type of transportation pretty unpractical for me. I understand why they need that notice, but… it would be better if I lived on the bus route so I could take the ‘normal’ bus, or if I lived close enough to walk (as I did when I first moved to this town 17 years ago.)

It also means that I have to leave home. Even when I have access to a vehicle that I could use whenever I want, I struggle so much to leave the house most days that it really isn’t worth the insurance or maintenance costs. It worked when my Mom was here, but not when I am alone (my son likes to leave the house much less than I do.)

Then I have to get changed into my swim suit and get in the water – the thought of which makes me cringe until I actually get in the water.

Afterwards it is awkward to change because I am wet, and I have to take a longish shower to get the chlorine off so I am not itchy for the next few days. Even so I can still smell chlorine (I guess it gets in my nose) for a day or two after.

And then I have to get home again – also which needs to be booked.

Then, too, I didn’t mention that although swimming calms me, the thought of all these steps brings me to panic up until the moment I get in the water.

So I would love to go swimming, but it seems there is just too much standing in the way of me actually following through with the activity – much like many other things in my life. It just takes too much to get there.

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