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Autism: Overrated Sanity

And then the days come when I am once more interested in learning and growing. This both surprises and saddens me – how could life go on after such pain? It often feels that when my heart breaks, it actually does break – and there should be nothing after it. No life. No laughter. No joy.

Perhaps death. Death feels like the appropriate answer to a broken heart. And in the moment only death holds hope that peace and joy could ever come again. I am not suicidal, but there are frequent moments in my life where I long for death. This is not the same thing. One is an action, the other is a prayer.

Mostly I pray, when things hurt so bad (and for me I get to that spot several times a month even on a decent month, for my past holds many painful memories, and my mind frequently forces me to relive the trauma) that God will take me home. Please take me home. Please don’t leave me here any longer. I can’t do this any more. I don’t want to be here anymore.

And in those moments I realize that I am absolutely no different from the child I was long ago, lying in my bed, praying for the same. I don’t belong here. I never have.

90's and earlier 008

This world is not my home, and this is a truth I can never alter – but there are some things that help me to hold on just a little longer.

I suppose for other people it is family and friends – and I do hold on for them. I pray to stay when I long to go because of what my death might do to other people… not a lot of other people, but there are some. What would happen to my son? To my girls (dogs?) To my mom?

I pray to stay for them, but make no mistake – this is a sacrifice for the ones I love. For me the sacrifice is in living, for death means home, and home is what I long for.

The other day I was watching Sherlock and he said something that I immediately had to go and type down (though I may not have it quoted word for word.) He said:

“Your death is an event that happens to other people. Your life is not your own; keep your hands off of it.”

I am not suicidal, but to stay is a sacrifice – and there are many days when I am lying in bed thinking I can’t keep holding on. I just can’t.

There are some things in life that make it easier to stay for a little longer – and that usually comes out in hobbies and events, such as learning to can. I can’t learn when I am struggling; my mind shuts down and won’t let any new knowledge in.

So when I got up in the morning and decided that this was the day I would make my first attempt at canning, I knew. I knew that whatever it was that I used to convince myself that what was real really wasn’t was worth it… is that too confusing?

Perhaps my grip on reality isn’t strong – but it isn’t strong on purpose. My reality threatens my sanity, and it is only… ONLY through letting go of the truth a little, and accepting the possibility that there is a way to escape the confines of the natural law – only then can I get up and live again.

However I do worry about where the line is, and how much more I can take before I cross it. Then again, there are days when I think that sanity is highly overrated.

 

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Autism: Apologies

There is this thought that continues to creep into my mind that I don’t love my husband as I should. Perhaps that isn’t the best way to put it, as once written, I suddenly get a picture in my mind of shocked responses from the people who are reading it. I do love my husband. I even like my husband. But I still don’t think I love him as I should.

Easter 2015

The thought grew stronger after I had written my post about wet gloves. Though all I wrote was true, and reflected accurately my experience of the situation, it wasn’t… edifying is the word that comes to mind – towards him.

So I had this constant though in my mind that I should revise the wording of that post. I went away camping for a week, and all the time fully intended to alter it when I got back home, before its scheduled release the following Monday. When I got home, however, I re-read the post and concluded that it was an accurate portrayal of my experience, and to alter it would be… almost a lie. I couldn’t do that.

While I don’t think my response to the situation – though admittedly much more intense than other people might have responded – requires my apology (I stick to what I wrote, and what I felt about that) I do believe I need to apologize for the way he came across – not only in my post, but in my thoughts as well.

It is difficult for people to understand struggles outside of their experiences. It is difficult for people to be able to consider how what they do might strongly affect another person. Especially in terms of such things that most people don’t have strong reactions to – such as heightened sensory issues, or even allergies.

For instance, I have a severe egg allergy. Every year when I go camping, and other people are around, the others seem to have a really difficult time understanding the allergy. They want eggs for breakfast. Pancakes are cooking on the grill. They want to add eggs to a different section of the grill. They don’t understand why I ask them to wait until my food is finished cooking before they add theirs. It isn’t that they are meaning to hurt me, but that they honestly can’t see why this is a problem.

It is the same with wet rubber gloves. Most people do not have sensory issues to the extreme where a bit of water accidentally dripped inside of rubber gloves will cause a full meltdown. It isn’t that when such things happen people are intentionally doing something to hurt me. I know this. It still hurts, but I know it isn’t on purpose.

So when I wrote, I wrote from my experience. My sensory issues cause me pain. Real pain. So it possibly comes across as the person who caused me that pain maybe should have known better. Maybe should have understood. It isn’t… edifying.

The thought continues to come through my head that I don’t love my husband as I should. So how should I love my husband?

Unconditionally.

Yet unconditional love is hard. Really hard. Nearly impossible for an easily hurt, easily offended sinner such as I am. In fact, for all relationships I have had, there is only one person I can think of that I have even come close for – and that is my son.

When my son does something that upsets me; or does things I wish he wouldn’t; or does something that hurts me, or someone else, or himself; or takes the wrong path, or… in that moment what I want most for him is that he overcomes the issue and does better next time. What I feel is a strong desire to reconcile that drowns out all thoughts of pain, or hurt, or anything negative. “See what you have done. Overcome it. Let it go.”

I think everyone should be love like that. I think that is the love my husband should have from me. So I pray, “Please Lord, teach me to love my husband as I love my son.” And I say to my husband, “I am sorry for not loving you like I should. Please be patient with me. God isn’t finished with me yet.”

 

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Autism: If The World Ends

If the world ends this year, or I am taken out of it, what would happen to my girls? To my son? To my mom? Death comes to us all, and I long for a world that is good. I long for a world in which I am good, and where evil had no place. Yet I fear abandoning my loved ones to a life of loneliness, terror, torture, despair. I fear abandoning my loved ones to a life or eternity of hell. This is not what I want for them.

For not knowing God, is that the life they deserve? It is the life I deserve, and it causes me to tremble. Yet by grace I am saved, and I pray that grace to cover them, too. This life may become so much worse than the pain I have known, and I am very afraid; for there is no promise I will be spared such things. I have no illusions that I should be spared when millions before and many beside me were not.

Yet this hope remains: that however this ends, and whatever I experience, my eternal future is secure in him that gave his life that I might be welcomed home.

How should I be awarded this surety when others were denied? Am I more righteous than any of them? Truly I know that I am not. I am saved because I believed the one who saved me. Saved. By grace and grace alone. And I long for the same for a world hurting, and dying, and lost.

If I had the words, I would shout it from the mountaintop. Yet the words that tumble from my mouth are rarely understood, and frequently cause offence.

So I whisper it quietly with tears pouring down my face: “Lord, please save them too.” For if God could love me through all of my sin, shame, and failure, I am fully convinced that there is nothing another has said, or done, or failed at that would deny God’s love to them… if only they would believe.

So I pray again, “Lord soften their unbelieving hearts, teach them of your love, and save them.”

And Lord? Please come quickly.

Vacation July 2016 014

 

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Autism: The Wrong Skin

It came upon me unexpectedly, as it often does. Was it timing, food, exhaustion… I really don’t know.

My entire body was irritated, as if I had crawled into the wrong skin. Skin that was too tight, and possibly made of wool.

Itchy, achy, irritated… I cringed as he came near, though I do not know why.

He wasn’t doing anything wrong… he wasn’t even doing anything different.

My day was controlled – I had nowhere to go, no one to visit. Nothing had happened, as far as I could see, to cause this agitation. My house was clean, and smelled good, yet I had not been overly busy. The sun shone for several hours, so it wasn’t the darkness. I slept okay. I ate decent foods.

Yet as he walked up behind me, I cringed, as if he were someone I didn’t want around – but that wasn’t true. I wanted him to leave. Not leave the house, just leave my space… yet he wasn’t invading it; I felt like he was.

How could I tell him, you make my skin crawl?  That would hurt him. That isn’t what I meant. Those were not the right words. I didn’t say them, but I thought them. Please Go Away!

I love you, but I’m wearing the wrong skin today. It isn’t your fault, you have done nothing wrong, but I don’t fit in this body right now, and I don’t want you to touch me.

The moment ended, yet everything was wrong; still everything felt wrong.

He took my hand as we walked, as he always does. Today it hurt. I wriggled my fingers. I moved them to different positions. I tried to ignore. Today it hurt though, and nothing I did reduced that pain.

I pulled away. I am sorry. My body hurts today.

Today your touch feels like nails on a chalkboard, yet it isn’t you.  I don’t want anyone to come close… today.

Please GO AWAY! Please don’t stand behind me. Please don’t touch me. Please don’t talk to me… I am going to cry. This hurts. It hurts so much… You’ve don’t nothing wrong. I don’t want to hurt him.

I say nothing. I pull away. I am sorry. He can’t understand.

 
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Posted by on November 9, 2015 in Autism: Reality

 

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